Thanks to the members that reached out with recommendations for a rheumatologist in NYC. I’ve been able to make an appt with one, albeit not for many months. We’ll see how it goes. 🙏

Here’s a podcast where I was a guest, https://www.youtube.com/watch?v=CAsc0D2WWOQ
I speak about perspective as a caregiver to my dad, who lived with Alzheimer’s, and how that role reshaped my perspective on the healthcare system. I also share my life as a parent of a child with autism — what advocacy looks like when the system doesn’t alway…Read more

This coming Saturday is the day — the walk will take place in Lincoln Park. It is one of the largest in the country with over 3,000 participants and raising over $1 million annually. Join me?!

It’s always dis-heartening to me when patients are given a diagnosis and handed a pamphlet. That’s it. Lack of guidance and compassion, let alone explaining what’s going on, it’s maddening. I’ve run into this recently with my mom’s ongoing physical and mental health journey — not to mention mine, too.

For any caregiver, I want to let you know please don’t be afraid to reach out for mental health assistance. You may think you can handle everything and maybe you can, but is your mental health suffering. Please consider, before your situation eats you alive.

I had a great conversation with my uncle yesterday about his caregivers, which are a combination of family and paid. Since he’s a veteran, he’s a received some good support from the VA and wanted me to share this link for other veteran caregivers to know about.…Read more

@jordan-m – I’ve also known caregivers who have been lost to suicide. Sigh. 😔